Grace continues to make progress. She has begun to move her legs more and mom reports that the movement is very similar to when Grace began to move her arms a while ago. She is completely weaned off of one of the strong medications that was to help with the storming. Grace has not stormed in several weeks. She will be continued to be weaned off of other storming medications as time goes on, but at this point Mom wants to focus on getting Grace on a more of a typical eating schedule. At this point Grace is on a continuous feeding cycle. Mom wants to move more toward three meals a day with nighttime feeds in addition.
Grace has not made any sounds as of yet since the special valve was placed, but she continues to make purposeful movements. Grace will begin making the physical therapy motions without her mom's help. She had several facial expressions to show her dislikes of certain activities. Grace's speech therapy has been going so well that they are planning on doing it more often. She responded to the taste of lemon with a lip pucker.
Mom's mom (grandma) is visiting the family from out of town. She went into the hospital last week with chest pain which resulted in her having a shunt put in. Mom will be extra busy taking care of her Mom until she gets back on her feet again and the rest of the family of course. Mom was so thankful that the reason for the chest pain was found and remedied before it turned into something more serious.
Grace's nurses were all on vacation at the same time this week. Although, Mom appreciated the efforts of the substitute nurses she was reminded how thankful she is for Grace's routine nurses who share the family's goals for Grace's progress.
The boys continue to keep Mom busy. The oldest brother has really learned how to be gentle around Grace. He loves being by her side and giving her hugs. The youngest is still learning that climbing on her head is not the best option at this point, but will learn soon :)
Mom said that in some ways she feels like she has had a special needs child forever and that things are becoming more routine. This is a relief in some ways, but in others it makes it more of a struggle to continue to stand firm in Grace's complete healing and restoration. That balance is challenging to say the least.
Please Pray For:
- Vocalization from Grace
- Quick recovery without complication for Grandma
- Wisdom in changing Grace's feeding cycle
- Balance between what is reality of the situation yet still standing in faith for Grace's complete restoration and healing
- Strong and united marriage
- Financial Provision (If you are interested in this area please e-mail info@gracegoodday.com)
