Saturday, August 9, 2008

Facial Expressions

Grace continues to make progress. She has begun to move her legs more and mom reports that the movement is very similar to when Grace began to move her arms a while ago. She is completely weaned off of one of the strong medications that was to help with the storming. Grace has not stormed in several weeks. She will be continued to be weaned off of other storming medications as time goes on, but at this point Mom wants to focus on getting Grace on a more of a typical eating schedule. At this point Grace is on a continuous feeding cycle. Mom wants to move more toward three meals a day with nighttime feeds in addition.

Grace has not made any sounds as of yet since the special valve was placed, but she continues to make purposeful movements. Grace will begin making the physical therapy motions without her mom's help. She had several facial expressions to show her dislikes of certain activities. Grace's speech therapy has been going so well that they are planning on doing it more often. She responded to the taste of lemon with a lip pucker.

Mom's mom (grandma) is visiting the family from out of town. She went into the hospital last week with chest pain which resulted in her having a shunt put in. Mom will be extra busy taking care of her Mom until she gets back on her feet again and the rest of the family of course. Mom was so thankful that the reason for the chest pain was found and remedied before it turned into something more serious.

Grace's nurses were all on vacation at the same time this week. Although, Mom appreciated the efforts of the substitute nurses she was reminded how thankful she is for Grace's routine nurses who share the family's goals for Grace's progress.

The boys continue to keep Mom busy. The oldest brother has really learned how to be gentle around Grace. He loves being by her side and giving her hugs. The youngest is still learning that climbing on her head is not the best option at this point, but will learn soon :)

Mom said that in some ways she feels like she has had a special needs child forever and that things are becoming more routine. This is a relief in some ways, but in others it makes it more of a struggle to continue to stand firm in Grace's complete healing and restoration. That balance is challenging to say the least.

Please Pray For:
  • Vocalization from Grace
  • Quick recovery without complication for Grandma
  • Wisdom in changing Grace's feeding cycle
  • Balance between what is reality of the situation yet still standing in faith for Grace's complete restoration and healing
  • Strong and united marriage
  • Financial Provision (If you are interested in this area please e-mail info@gracegoodday.com)

9 comments:

Happy said...

Thank God that Grace is continuing to progress as she is weaned off more medications. Thank God that she is completely healed by Jesus' stripes.

Praise God that the storming has stopped.

Praise God that consideration is being given to a more typical feeding schedule.

Praise God that Grace is working on making sounds and that she is making purposeful movements.

Praise God for physical therapy and that she does it without Mom's help.

Praise God for Grace's facial expressions that show dislikes of certain activities.

Praise God that Grace's sense of taste is functioning well.

Praise God for Mom's Mom getting back on her feet.

Praise God for Grace's nurses who care for her and have progressive goals for her.

Praise God for the boys' love and gentleness toward Grace.

Praise God for Mom's continuing faith to see Grace completely healed. All things are possible with God. He has brought Grace through many miracles and he will continue until the healing is completed.

Thank God that many people are standing daily with Mom praying God's word for Grace. He hastens to perform His Word. What He has promised, He will do, if we don't give up.

Grace is redeemed by the blood of the Lamb.

Shalom - nothing missing, nothing broken. He heals all of our infirmities.

Patricia said...

My thoughts and prayers are with you daily sweet Grace, you keep making progress little one every step counts no matter how small it is . Special thoughts and prayers for you Mom and Dad as well . God Bless you all and know that you are loved and thought of everyday .1sweetpea

Unknown said...

Were it not for the number of prayers lifted on Grace's behalf, I would find this situation utterly unbelievable. Since I know that God is mighty, All I can do is praise Him!
Wow!
What an awesome God we have, That He would not only bother Himself with Grace, but be thrilled that we asked for His help!

Unknown said...

We haven't posted in some time, however please know that we send our love and stand in the gap with prayer for all the needs of family and little Grace....each day we have continued in faith to praise God and intercede for complete restoration for Grace. Our God, fully aware of our needs and completely in love with us in the valley and on the mountain top.

Elisabeth said...

Lord, we praise You for the progress that has been made. We know that You were the one who sent caring nurses who share a common vision with the family. You were the one who directs purposeful movements in arms and legs. You were the one who taught one brother to be gentle.

We ask that hope and gentleness would abound in this family. We ask for joy and laughter amidst the constant work. We ask for a set schedule of meals, meaningful vocalization, muscle tone, a strong marriage and a strong faith. We ask that You be given the glory for all of the progress. Meet this family's every need.

In Your name we pray, Amen.


Elisabeth

Happy said...

Praise God that Grace continues to be healed daily and that new manifestations of healing are appearing regularly.

Praise God for Mom and Dad's faithfulness to Grace's care and needs and for their strong marriage.

Praise God that praise stills the enemy and the avenger.

Praise God that he is a continuous giver and that we are his recipients.

Praise God that Grace is completely healed by Jesus' stripes.

Praise God for Grace's brothers who love her and treat her with gentleness.

Praise God that Grace is able to show facial expressions and for her physical and speech therapy.

Praise God for wisdom to make wise decisions regarding Grace's feeding schedule.

Praise God that Mom's Mom is healed by Jesus' stripes.

Praise God that all financial needs are met according to His riches in glory through Christ Jesus.

Shalom - nothing missing, nothing broken.

Happy said...

Praise God for His goodness and His wonderful works to Grace and her family.

Praise God that Grace is blessed and that He will never leave her nor forsake her.

Praise God that Grace is healed by Jesus' stripes in every area of her life.

Praise God that today she is healed because we call things that are not as though they are already done.

Praise God for restoration of everything that Grace had lost and more because the enemy has to pay back 7x what he tried to take.

Praise God that Grace and her family have abundant life.

Praise God for the people who pray daily for Grace and her family.

Praise God for the nurses and all the people who help the family. They are blessed, also.

Praise God for Mom and Dad's strong, loving, happy, marriage.

God is a continuous giver of love, joy, peace, patience, goodness, kindness, gentleness, faithfulness, and self-control. He also gives us our daily needs.

Shalom - nothing missing, nothing broken.

Happy said...

Praise God for Grace's complete healing by Jesus' stripes.

Praise God that Grace can do all things through Christ who strengthens her.

Praise God that all things are possible with God.

"Be still and know that I am God."

Praise God that Grace does physical therapy without help.

Praise God that Grace is completely restored.

Praise God for his mercy and grace.

Praise God that Grace is redeemed by the Blood of Jesus.

Shalom - nothing missing, nothing broken.

Happy said...

Praise God that Grace is off more and more medications and that her progress is phenomenal.

Praise God that Mom's Mom is doing well.

Praise God that grace is gaining back skills and is learning new ones on a regular basis.

Praise God that there are no side effects from any medications.

Praise God for Grace's complete restoration.

Praise God for Mom and Dad's strong, loving relationship.

Praise God for all financial needs provided by God's riches in glory through Christ Jesus.