Today we spent the better part of our day at Children's Hospital doing a routine trache scope. This is done every 6 months, just to make sure everything looks good for the trache internally. The neat thing is that our ENT specialist actually goes to our church and is willing to pray with patients prior to any procedure. That said, Abigail looks good, maybe just a small amount of irritation at the bottom of her trache . This could be from people sticking the suction catheter too far down (we will need to revisiting using the measuring increments to avoid this). This could also be a result of the reflux of her tube feeds (acidic juices don't belong in the trachea!). But it does not look too alarming at this point, just something to make note of.
After doing some thinking, and considering the above information, we have decided to back off of the boluses a little bit. We are going to do 5 a day at a only 150 mls and the rest on tube feed overnight. This will hopefully decrease the agitation, increased secretions, and reflux we have been seeing more and more following a bolus. I think her tummy just needs a little more time to adjust to the increased volume, so we are going to back off and take it a little slower. Also, she is so agitated that we are unable to use the passi-mier following a bolus, and this sets her back in vocalization and removing the trache. I think that is more important at this time than bolusing! But I know we will get there!
Thank you to good friends who were willing to spend time with my boys today while I cared for Abigail. They had a great time. Until next time...
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5 comments:
Praise God for the trache scope and clean "Bill of Health."
Praise God for the Christian ENT specialist who prays with patients prior to treatment.
Praise God for the healing of any irritation at the bottom of her trache.
Praise God for every decision regarding Abigail's feeding system.
I pray for restoration of Abigail's peace after boluses.
Praise God that Abigail is progressing in vocalization and that her trache will be removed soon.
Praise God for every person who has helped this family with child care and with every need they have had.
Shalom -- nothing missing, nothing broken.
God we praise you for all you are and how you take care of our every need in your perfect timing...we pray for continued healing for Abigail...we pray for patience and peace for mom and dad...we pray for quality family time and normalcy for the boys...and Father, we pray for your abiding presence in all things. Father we love you and give you all praise and honor and glory this day...in the precious name of your son, our Saviour we pray...amen.
Lisa and Tim
Just checking in and letting you know we're still praying here.
~Jess
Praise God that Abigail is getting better and better every day.
Praise God that she is peaceful while healing takes place.
Praise God for His wonderful restoration and recreation of every part of Abigail's body.
Praise God that she loves God with all her heart, soul, mind and strength.
Praise God for Abigail's family who loves and cares for her.
This is the day that the Lord has made, we will rejoice and be glad in it.
Shalom -- nothing missing, nothing broken.
Praise God for Abigail's progress.
Praise God that He is the Lord that heals her.
Praise God that He sent His Word and healed Abigail and delivered her from all destruction.
Praise God for the gift of His Son, Jesus, our redeemer.
Shalom -- nothing missing, nothing broken.
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