Thursday, March 27, 2008

Little by little

Grace continues to respond. Today mom was holding her, and as mom put her down Grace's heart rate went up. It's almost like Grace was having a tantrum in her own spunky little way and saying "Mommy! don't leave me!" Grace recognizes what's going on, even if she can't verbalize it yet.

Grace has a bit of an infection today. Nothing too serious, but she has a temperature of 99.5 and she's had a lot of bowel movements leading to a bit of diaper rash. It may be related to the large doses of antibiotics Grace recieved upon arriving at the hospital. The antibiotics were very effective in killing off infections, but they also can kill off helpful bacteria and affect the equilibrium. While the infection lingers, Grace isn't allowed to leave the room.

The staff in the rehab wing is incredible. One staffer said "I'm not supposed to say this, but because I know your beliefs I want you to know that I'm praying for Grace." Other members on staff read scripture in Grace's room. Some have cried over the situation.

The storming episodes come and go. Depending on the time of day, the staff changes Grace's medication to allow for therapy. When the dosage is less, the storming increases.

Mom and Dad are in a bit of a dilemma with how to spend their time. On one hand, they really appreciate all the love and support they are recieving! They've commented on many occasions how they don't know what they'd do without all the support! On the other hand, they don't know how to deal with their phone "ringing constantly." They don't want to be rude to people who show that they care, but constantly being on the phone takes away from time with the family and prevents accomplishing even the smallest of tasks. To date, they are still looking for the best way to set that boundry.

Please pray for:
  • A strong marriage/unity for mom and dad
  • Wisdom for mom and dad to know how to best put their family first
  • Grace's complete recovery and full brain function
  • Financial provision for the family (If you are interested in helping in this way please e-mail info@gracegoodday.com)

7 comments:

mimipj said...

I will be praying for grace's infection and rash right now. Along with all the other specifics on todays prayer list from Jose. Mom
you are so wonderful at setting boundaries. I have learned from YOU!
I will pray that you can find the balance you need. There is always Caller ID! We all love and care for your family and thanks to Jose we can all be on the front lines with you I am on call if you need Anything.
Praying and standing with you.

Jen said...

Hi, mom. It's OK to let some of those calls go to voicemail! :-) We're praying for you!!!

Unknown said...

Hey Mom and Dad,
Caller ID and voicemail are wonderful things! Go ahead and use them! People will understand the need to be focused on what you are about at the moment...perhaps you may want to indicate in your voice message how you appreciate the call, their concern and support and hope they will check the blog for updates. If that is too much, turn the phone off when you are not wanting or able to receive calls, and it will automatically go to voicemail...for those of us who live and work by cell phone, boundaries are critical for sanity!

We are all learning from you two and your family...in many ways. We thank God for the opportunity to know you all, to love you and to be able to pray for you daily. What a huge blessing! I cannot wait to get up in the morning to read the updates...sometimes I have to read in the middle of the night!

May this day be one full of unexpected blessings in ways only the Father can deliver!
Big hugs and encouragement to turn off the phone!!!
Lisa and Tim

Happy said...

Praise God for all He has done and is doing on Grace's behalf. Daily he provides her every need and her body functions as it was designed by Him.

The rash and the infection are distractions and they have to go in Jesus' Name. Grace is healed in every area. Her brain is restored and functioning as it was designed by God. She speaks with her body and her words are coming forth in Jesus' Name. Faith makes our hopes a reality. Our words bring faith to pass. I command Grace to be made whole in Jesus' Name.

It is a blessing that the rehab staff is praying and believing in agreement with the others who are praying for Grace's complete healing. With God all things are possible.

I thank God for His time management for the family that they spend time together first and to discern what is most important and give them peace about not answering every phone call.

Jose's Mom

Elisabeth said...

We praise You, God, for the healing you have already granted. We pray for continued healing of body, soul and spirit. You know the source of the infection, upset tummy and subsequent diaper rash. We ask You to take care of that and alleviate the worries from the family and medical staff.

We pray that You would strengthen Mom and Dad, along with their marriage. Help them to lean on each other and on You. Give them the wisdom to find balance and proper boundaries. We pray that You keep their body, souls and spirits strong, as well.

Grant this family moments of rest, peace and joy every day. We ask these things in Your name, for Your glory's sake. Amen.


Elisabeth

(By the way, a few days ago Mom tried valiantly to post a message but her computer will not allow her. Know that Aunt Sheila and Uncle Virg are praying for you daily.)

Jess said...

Ok, I'm repeating what some others have already said, but invest in a really good answering machine, and use it! I'm sure people will understand, and it may save your sanity! Even turn the ringer off on the phone, and the volume on the answering machine way down, so you don't hear the calls and feel guilty about not answering. I can't imagine trying to manage time between two young ones at home, and another in the hospital. You have enough going on as it is, so just commit to listening to the messages once a day or every other day, and respond as you want to. Or possibly there's someone from your church that would return phone calls if needed, etc?

Continuing to pray for you all!

~Jessica

Unknown said...

The honesty of the postings is so humbling and I join in all prayer that surrounds this little child of God in the name of Jesus and in our authority to do so. I am praying for sensitivity on the part of the willing warriors toward this family's need to "go into their Strong Tower" and feel peace there. I will pray too for the sensitive words that dad will prepare to leave as a general message of thanks and direction toward the website of his choosing for placement on the family cell phone and home phone answering machine and maybe a copy on the door of the house. Everyone will understand.
In love and peace