One Life to Love

Hello again everyone! I am finished with my CNA classes, and back in business with the blog. I will take my state test on December 3rd, and hopefully find employment with Cincinnati Children's Hospital. It was fun to be a student again, but I really love being a stay at home mom to my children and would not trade it for the world.

It makes me think of my new favorite song on the radio, "One Life to Love." You only get just one time around, you only get one shot at this. One chance to find out the one thing that you don't wanna miss. One day when its all said and done, I hope you see that it was enough...I can honestly look back and say that Abigail was loved and lived life to its full. And since we never know what will happen tomorrow, I always try to live each day like it is our last for my husband and children as well.

Abigail has hit a standstill in her Valium weaning. Basically, we made the change without issue from 8mg 4 times a day to 4mg 4 times a day, but when we made the drop to 2mg 4 times a day, things did not go well. She became very agitated, startled a lot more, and her pupils became dilated. As a result, we backed up to the 4mg dose. It took about a week to get back to a therapeutic dose, but we are doing well again. I think we are going to take a little break from Valium weans until after the holidays, and then take it a little slower (maybe only drop .5mg per week). Yes, we do see a difference in alertness as a result. She sleeps less during the day and blinks yes and no more readily. Sometimes she just gives you a disgusted look. Now when she wants to be held or out of here chair, she pulls her head and body forward repeatedly and just refuses to sit back.

Since we are taking a break from medicine weans, we have started on changing the J tube to a G tube, and bolus feeding so she is not continuously on the pump. So far we have added 4 boluses a day. Next Monday we will make more changes. I am always in favor of any move toward her body behaving more naturally.

We just received everything we needed in the mail yesterday for a computer setup at our house where Abigail can use a switch to read stories, play games, and listen to songs on our computer. I am very excited to get it all setup. She loves going to Perlman to play, and now she will be able to do it in our own home.

Lastly, her 4th birthday is this Saturday, and if weather permits we will be meeting with Sergent Steve Newsom on Saturday to see the park bench, tree, and plaque. If anyone would like to join us please respond on the blog and we will try to coordinate with you.