As I write this post, Richard and I have just gotten home from our first marriage conference since before Abigail was born. A friend gifted us with admission to the weekend to remember conference in Cincinnati, and we had a wonderful time. At the end, we were even able to renew our wedding vows, after 7 wonderful years of marriage.
We had an appointment last Monday with Dr. Levin. Some highlights: Abigail is losing some weight, which is even better than staying put! We removed her J-tube, so now it is strictly a G-tube. This is a more typical way of feeding, and if it comes out I can replace it instead of going to the hospital. And with how active she is getting with her hands, and her two busy brothers, I will not be shocked when one day it gets pulled out! What else...We continue to slowly increase the dose of Keppra, her seizure medication. We are finally seeing some progress. She is down to about3-4 observed seizures a day. We have more work to do, but we are getting there. And we have our first visit with the neurologist on March 26th, so please pray for that date.
Monday, March 9, 2009
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